Aandeel Pharming Group NL0010391025

quote:

Declan schreef op 27 september 2017 14:36:

[...]

Viel net in de bus intressante zaken ;-)

Ruud..

quote:

beeldscherm schreef op 27 september 2017 15:05:

[...]

at the 12th Annual
ICORD Conference and 6th China Rare Disease Summit
which was held in Beijing China 7-10 September 2017.
For patients in China with rare diseases there isn’t a lot
of support or treatments available, and with potentially
25,000 or more HAE patients in China alone, most of
them undiagnosed, and the ones that are have little to
no options for treatment. This conference highlighed
the need for change.
Thankfully the Chinese Government are looking to
improve the framework for these patients, and this will
hopefully mean that in the near future patients will
have support and access to available treatments
I was asked to present in three sessions. My first
presentation was my personal story, and the benefits
of a dedicated support group like HAE Australasia.
My second presentation was alongside Dr. Zhi from
China, and Professor Konrad Bork from Germany,
and I presented on HAEi, and what can be achieved
through a rare disease international network. My third
presentation was to the Chinese media on the successes
that HAEi have had.
The conference was a great success, and there is an
undertaking from us at HAEi to help support the Chinese
HAE patients, Dr. Zhi and other doctors in China, along
with CORD to start their own patient dedicated HAE
support group so that they can advocate for treatment
options, help educate and support others around their country.

eea kan nu ook voor Pharming in een stroomversnelling raken.
Ruconest all over the world,remember!

quote:

Declan schreef op 27 september 2017 15:11:

Verwacht een snelle BLA en een voorlopige market app.
FDA is niet gek er wordt natuurlijk hard gewerkt achter de schermen.

Ruud.. en dat kan id zo maar uit de lucht vallen.

quote:

Petex schreef op 27 september 2017 15:01:

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leuke :-) ! Maar of iedereen begrijpt wat je bedoelt....?!?!?
AB van mij!

quote:

beeldscherm schreef op 27 september 2017 15:32:

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nee jij alleen snapt hem....jij bent blond 100% hahahahaha

quote:

Petex schreef op 27 september 2017 15:38:

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grrrinnikkkk
leuk een beetje rust in de koers...geeft gelegenheid voor een beetje humor :-)

quote:

beeldscherm schreef op 27 september 2017 15:41:

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dat is er te weinig , mensen realiseren zich niet dat gezondheid eten en drinken het grootste goed is....

quote:

Bonbini schreef op 27 september 2017 15:50:

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als ik thuis kom lees ik eerst het forum en kan dan aan de "toon" weten, tot op de cent nauwkeurig, wat de koers doet. (lol) heerlijk die tombola van emoties.